Publications of Robert M. Cook-Deegan    :chronological  combined  bibtex listing:

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Books

  1. R.M. Cook-Deegan, The Gene Wars: Science, Politics, and the Human Genome (1994), New York and London: WW Norton & Co.; paperback 1996 (The Alfred P. Sloan Foundation and the National Science Foundation gave grants to support this work through the Kennedy Institute of Ethnics, Georgetown University. Published also in Korean (translated by Shin Won Literary Agency, published by Minum, 1995) and Japanese (translated by K. and G. Ishidate, published by Kogaku Dojin, 1996). Peer- reviewed and accepted for publication by Oxford University Press, University of California Press, and Harvard University Press.) .

Journal Articles

  1. A. So, B. Sampat, A. Rai, R. Cook-Deegan, J. Reichman, R. Weissman, and A. Kapczynski, Is Bayh-Dole Good For Developing Countries? Lessons from the U.S. Experience, PLoS Biology, vol. 6 no. 10 (October 28, 2008), pp. e262 [journal.pbio.0060262] .
  2. J.R. Pohlhaus, and R. Cook-Deegan, Genomics Research: World Survey of Public Funding, BMC Genomics, vol. 9 no. 10 (October, 2008), pp. 472 .
  3. D. Karp, S. Carlin, R. Cook-Deegan, D. Ford, G. Geller, D. Glass, H. Greely, J. Guthridge, J. Kahn, R. Kaslow, C. Kraft, K. MacQueen, B. Malin, R. Scheuerman, and J. Sugarman, Ethical and Practical Issues Associated with Aggregating Databases, PLoS Medicine, vol. 5 no. 9 (September 23, 2008), pp. e190 [journal.pmed.0050190] .
  4. K.D. Christensen, J.S. Roberts, C.D. Royal, G.A. Fasaye, T. Obisesan, L.A. Cupples, P.J. Whitehouse, M.B. Butson, E.P. Linnenbringer, N.R. Relkin, L.A. Farrer, R.M. Cook-Deegan, and R.C. Green, Incorporating Ethnicity into Genetic Risk Assessment for Alzheimer’s Disease: The REVEAL Study Experience, Genetics in Medicine, vol. 10 no. 3 (March, 2008), pp. 207-214 .
  5. E.M. Davidson, R. Frothingham, and R. Cook-Deegan, Science and Security: Practical Experiences in Dual-Use Review, Science, vol. 316 (June 8, 2007), pp. 1432-1433 .
  6. R.M. Cook-Deegan, The Science Commons in Health Research: Structure, Function, and Value, Journal of Technology Transfer, vol. 32 (June, 2007), pp. 133-156 .
  7. M. Angrist and R. Cook-Deegan, Who Owns the Genome?, The New Atlantis no. 11 (Winter, 2006), pp. 87-96 .
  8. D. Tofano, I.R. Wiechers, and R.M. Cook-Deegan, Edwin Southern, DNA blotting, and Microarray Technology: A case study of the shifting role of patents in academic molecular biology., Genomics, Society, and Policy Journal, vol. 2 no. 2 (Summer, 2006), pp. 50-61 .
  9. R. Cook-Deegan and T. Dedeurwaerdere, The Science Commons in Life Science Research: Structure, Function and Value of Access to Genetic Diversity, International Social Science Journal, vol. 188 (June, 2006), pp. 299-317, UNESCO .
  10. L. Pressman, R. Burgess, R. Cook-Deegan, S.J. McCormack, I. Nami-Wolk, M. Soucy and L. Walters, The Licensing of DNA Patents by US Academic Institutions: An Empirical Survey, Nature Biotechnology, vol. 24 (January, 2006), pp. 31-39 .
  11. G.S. Ginsburg, M. Angrist, and R.M. Cook-Deegan, Genomics and Medicine at a Crossroads in Chernobyl, Science, vol. 314 (2006), pp. 62-3 .
  12. T. Caulfield, R.M. Cook-Deegan, F.S. Kieff, and J.P. Walsh, Evidence and Anecdotes: An Analysis of Human Gene Patenting Controversies, Nature Biotechnology, vol. 24 no. 9 (2006), pp. 1091-1094 .
  13. J. Fore, I.R. Wiechers, and R.M. Cook-Deegan, The Effects of Business Practices, Licensing, and Intellectual Property on Development and Dissemination of the Polymerase Chain Reaction: Case Study, Journal of Biomedical Discovery no. 1 (2006), pp. 7 .
  14. H. Shanawani, L. Dame, D. Schwartz, and R.M. Cook-Deegan, Non-Reporting and Inconsistent Reporting of Race and Ethnicity in Articles that Claim Associations among Genotype, Outcome, and Race or Ethnicity, Journal of Medical Ethics no. 32 (2006), pp. 724-728 (doi: 10.1136/jme.2005.014456.) .
  15. A.D. Lyerly, K. Steinhauser, E. Namey, J.A. Tulsky, R.M. Cook-Deegan, J. Sugarman, D. Walmer, R.R. Faden, and E. Wallach, Factors that Affect Infertility Patients’ Decisions about Frozen Embryos, Fertility and Sterility, vol. 85 no. 6 (2006), pp. 1620-1630 .
  16. C.D. Zick, C. Mathews, J.S. Roberts, R.M. Cook-Deegan, and R.J. Pokorski, Genetic Testing for Alzheimer's Disease and Its Impact on Insurance Purchasing Behavior, Health Affairs, vol. 24 (March/April 2005), pp. 483-490 .
  17. R. Cook-Deegan and S. McCormack, Patents, Secrecy, and DNA, Science, vol. 293 (July 13, 2001), pp. 217 (http://www.sciencemag.org/cgi/content/full/2 93/5528/217 with webnote supplement http://www.sciencemag.org/cgi/content/full/2 93/5528/217/DCI.) .
  18. R. Cook-Deegan, Hype and Hope Introductory essay to "Scientists" Bookshelf Special Edition: Books of Life, American Scientist, vol. 89 (Jan-Feb, 2001), pp. 62-64 .
  19. A. Bar-Shalom and R. Cook-Deegan, Patents and Innovation in Cancer Therapeutics: Lessons from CellPro, Milbank Quarterly, vol. 80 (2002), pp. 637-676 .
  20. R. Cook-Deegan, Privacy, Families, and Human Subject Protections: Some Lessons from Pedigree Research, Journal of Continuing Education in Health Professions, vol. 21 (Fall, 2001), pp. 224-237 (http://www.jcehp.com/pdf/jcehp_21_4.pdf.) .
  21. R.M. Cook-Deegan, A. Johnson, and C. Chan, Global Genomics & Health Disparities: Emerging Issues for Nations and Populations, edited by RJR Blatt and B Kivimae Krimgold, Journal of BioLaw and Business, Special Supplement (2001), pp. 22-36 .
  22. R. Cook-Deegan, Protecting the Vulnerable in Brain Research, Cerebrum, vol. 2 (Spring, 2000), pp. 73-91 .
  23. A.M. Thomas, G. Cohen, R. Cook-Deegan, J. O'Sullivan, S.G. Post, A.D. Roses, K.F. Schaffner, and R.M. Green, Alzheimer Testing at Silver Years, Cambridge Quarterly of Healthcare Ethics, vol. 7 (1998), pp. 294-307 .
  24. J. Burris, R. Cook-Deegan, and B. Alberts, The Genome Project after a Decade: Policy Issues, Nature Genetics, vol. 20 (1998), pp. 333-335 .
  25. R.M. Cook-Deegan, Commentary on "Distinguishing Genetic from Nongenetic Medical Tests: Some Implications for Antidiscrimination Legislation" by JS Alper and J Beckwith, Science and Engineering Ethics, vol. 4 (1998), pp. 151-154 .
  26. R.M. Cook-Deegan, Does NIH Need a DARPA?, Issues in Science and Technology, vol. 13 (Winter, 1997), pp. 25-28 (http://www.nap.edu/issues/13.2/cookde.htm.) .
  27. N. Relkin and R. Cook-Deegan, National Institute on Aging, Alzheimer's Association Working Group. Apolipoprotein E genotyping in Alzheimer's Disease, The Lancet, vol. 347 (1996), pp. 1091-1095 (R Cook-Deegan chaired the subgroup on "counseling, ethical and medicolegal issues;" N Relkin was principal author and took the lead on organizing and writing this article.) .
  28. R.M. Cook-Deegan, Tough Times, Tough Choices, The Bridge (Journal of the National Academy of Engineering), vol. 25 (Fall, 1995), pp. 2-4 .
  29. J.F. Leckman, G.R. Elliott, E.J. Bromet, M. Campbell, D. Cicchetti, D.J. Cohen, J.J. Conger, J.T. Coyle, F.J. Earls, R. Feldman, M. Green, B. Hamburg, A.E. Kazdin, D.R. Offord, D. Purpura, A.J. Solnit, F. Solomon, and R. Cook-Deegan, Report Card on the National Plan for Research on Child and Adolescent Mental Disorders: The midway point, Archives of General Psychiatry, vol. 52 (1995), pp. 715-723 .
  30. R.M. Cook-Deegan, Genetics and the Social Ethics of Reseach (Editorial), Amyloid 1 (December, 1994), pp. 283-295 .
  31. R. Cook-Deegan, D.S. Fredrickson, S.C. Joseph, and D.P. Rall, Medicine, Public Health and Environment, Issues in Science and Technology (Fall, 1994), pp. 68-74 .
  32. R.M. Cook-Deegan, Private Parts, The Sciences (April, 1994), pp. 18-23 (This is an adapatation of chapters 16 and 17 from The Gene Wars, condensed by R Coontz, Senior Editor, and PG Brown, Editor- in-Chief, New York Academy of Sciences.) .
  33. R.M. Cook-Deegan, Origins of the Human Genome Project, Risk: Health, Science and Environment, vol. 5 (Spring, 1994), pp. 97-118 .
  34. K.E. Hanna, R. Cook-Deegan, R.Y. Nishimi, Bioethnics and Public Policy: Still Seeking a Forum, Politics and the Life Sciences, vol. 13 (February, 1994), pp. 102-105 .
  35. R.M. Cook-Deegan, Germ-Line Gene Therapy: Keep the Window Open A Crack, Politics and the Life Sciences, vol. 13 (1994), pp. 217-220 .
  36. R.M. Cook-Deegan and R. Eisenberg, Patents, Technology Transfer, and Genome Research. Summary of a Franklin Pierce Law Center Conference, Human Genome News (1994), pp. 6-7 .
  37. H.J. Geiger and R. Cook-Deegan, The Role of Physicians in Conflicts and Humanitarian Crises: Case Studies from the Field Missions of Physicians for Human Rights, 1988-1993, Journal of the American Medical Association, vol. 270 (4 August 1993), pp. 616-620 .
  38. K.E. Hanna, R. Cook-Deegan, and R.Y. Nishimi, Finding a Forum for Bioethics in U.S. Public Policy, Politics and the Life Sciences, vol. 12 (1993), pp. 205-219 .
  39. R.M. Cook-Deegan, Mapping the Human Genome, Southern California Law Review, vol. 65 (1991), pp. 1501-1518 .
  40. L.L. Cavalli-Sforza, A.C. Wilson, C.R. Cantor, R. Cook-Deegan, and M.-C. King, Call of a Worldwide Survey of Human Genetic Diversity: A Vanishing Opportunity for the Human Genome Project, Genomics, vol. 11 (1991), pp. 490-491 .
  41. R.H. Sandler, P.R. Epstein, R. Cook-Deegan, and A. Shukri, Leeter from Cukurca: Initial Medical Assessment of Kurdish Refugees in the Turkey-Iraq Border Region, Journal of the American Medical Association, vol. 266 (7 August 1991), pp. 638-640 .
  42. J.D. Watson and R. Cook-Deegan, Origins of the Human Genome Project, FASEB Journal, vol. 5 (1991), pp. 8-11 .
  43. J.D. Watson and R. Cook-Deegan, Perspectives on the Human Genome Project, Biofutur, vol. 94 (October, 1990), pp. 65-68 .
  44. J.D. Watson and R. Cook-Deegan, The Human Genome Project and Children of Tomorrow, California Pediatrician, vol. 6 (Fall, 1990), pp. 7-8 .
  45. R.M. Cook-Deegan, NIH-DOE Joint Working Group on Ethnical, Legal, and Social Issues Established, Human Genome News, vol. 2 no. 5 (May, 1990) .
  46. R.M. Cook-Deegan, Social and Ethical Implications of Advances in Human Genetics, Southern Medical Journal, vol. 83 no. 8 (1990), pp. 879-882 .
  47. J.D. Watson and R. Cook-Deegan, The Human Genome Project and International Health, Journal of the American Medical Association, vol. 263 (1990), pp. 3322-3324 .
  48. R.M. Cook-Deegan, Human Gene Therapy and Congress, Human Gene Therapy, vol. 1 (1990), pp. 163-170 .
  49. R.M. Cook-Deegan, M. Guyer, B.J.F. Rossiter, D.L. Nelson, and C.T. Caskey, Report of the Large DNA Insert Cloning Workshop, Genomics, vol. 7 (1990), pp. 654-660 .
  50. R.M. Cook-Deegan, B.J.F. Rossiter, L. Engel, D.L. Nelson, and C.T. Caskey, Report of the X Chromosome Workshop, Genomics, vol. 7 (1990), pp. 647-654 .
  51. F.M. Zweig, L.K. Neuman, S. Finesilver, R. Cook-Deegan, and C. Bezold, The Plenary on Courts, Science, Technology and the Future, Courts, Health Science, and the Law, vol. 1 (1990), pp. 194-204 .
  52. R.M. Cook-Deegan, The Alta Summit, December 1984, Genomics, vol. 5 (1989), pp. 661-663 (Reprinted in Human Genome: 1989-1990 Program Report, US Department of Energy, Office of Energy Research, Office of Health and Environmental Research, DOE/ER-0446P, March 1990.) .
  53. H. Hu, R. Cook-Deegan, and A. Shukri, The Use of Chemical Weapons, Journal of the American Medical Association, vol. 262 (1989), pp. 640-643 .
  54. R.M. Cook-Deegan, editor and author, Candle and Caduceus, Newsletter of the Amnesty International USA Professionals' Network, vol. 4 no. 1 (June, 1988) .
  55. R.M. Cook-Deegan and P.J. Whitehouse, Alzheimer's Disease and Other Dementias: The Looming Crisis, Issues in Science and Technology, vol. 3 (Summer, 1987), pp. 52-63 .
  56. R.M. Cook-Deegan, co-editor, Candle and Caduceus, Newsletter of the Amnesty International USA Health Professional Network, vol. 3 no. 1 (May, 1987) .
  57. R.M. Cook-Deegan, On Mapping the Human Genome, Clinical Chemistry, vol. 33 (1987), pp. 349-351 (Excerpts of the proposal for an OTA assessment of mapping the human genome.) .
  58. R.M. Cook-Deegan, Dealing with the Impact of Dementia, Business and Health (September, 1986), pp. 26-28 .
  59. R.M. Cook-Deegan, Dementia and Federal Policy, American Journal of Alzheimer's Care, vol. 1 no. 2 (Spring, 1986), pp. 5-6 .
  60. R.M. Cook-Deegan, editor and author, Candle and Caduceus, Newsletter of the AIUSA Health Professional Networks, vol. 2 no. 1 (March, 1986) .
  61. R.M. Cook-Deegan, editor and author, Candle and Caduceus, Newsletter of the AIUSA Health Professional Networks, vol. 1 no. 2 (Fall, 1985) .
  62. R.M. Cook-Deegan, editor and author, Candle and Caduceus, Newsletter of the AIUSA Health Professional Networks, vol. 1 no. 1 (Spring, 1985) .
  63. H.G. Tomasiewicz, R. Cook-Deegan, and D.M. Chikaraishi, Isolation of a cDNA clone complementary to sequences for a 34-kilodalton protein which is a pp60v-src substrate, Molecular and Cellular Biology, vol. 4 (1984), pp. 1935-1938 .
  64. R.M. Cook-Deegan and J.H. Austin, Implications of normal lymphocyte DNA content in familial Alzheimer disease, American Journal of Medical Genetics, vol. 15 (1983), pp. 511-513 .
  65. R.M. Cook-Deegan, Letter: The researcher as a Congressional director, Trends in Biochemical Sciences, vol. 7 (1982), pp. 434 .
  66. R.M. Cook-Deegan, Letter: Medicine and Political Death, The PHAROS of Alpha Omega Alpha Honor Medical Society, vol. 45 (1982), pp. 39 .
  67. E. Erikson, R. Cook, G.J. Miller, R.L. Erikson, The same normal cell protein is phosphorylated after transformation by avian sarcoma viruses with unrelated transforming genes, Molecular and Cellular Biology, vol. 1 (1981), pp. 43-50 .
  68. R.M. Cook-Deegan, S.A. Schneck, and D.B. Clark, Twins with Alzheimer's Disease, Archives of Neurology, vol. 38 (1981), pp. 300-301 .
  69. R.M. Cook-Deegan, The Narrow Gauge (reply), New England Journal of Medicine, vol. 302 (1980), pp. 63-64 .
  70. R.M. Cook-Deegan, The Narrow Gauge (Sounding Board), New England Journal of Medicine, vol. 301 (1979), pp. 500-501 .
  71. R.M. Cook-Deegan, B.E. Ward, and J.H. Austin, Studies in aging of the brain, IV: Familial Alzheimer Disease: its relation to transmissible dementia and microtubular defects, Neurology, vol. 29 (1979), pp. 1402-1412 .
  72. B.E. Ward, R. Cook, A. Robinson, and J.H. Austin, Increased Aneuploidy in Alzheimer Disease, American Journal of Medical Genetics, vol. 3 (1979), pp. 137-144 .
  73. R.M. Cook-Deegan, Memory loss in Alzheimer disease, Annals of Neurology, vol. 5 (1979), pp. 105-106 .
  74. R.M. Cook-Deegan, J.H. Austin, Precautions in familial transmissible dementia, including familial Alzheimer's Disease, Archives of Neurology, vol. 35 (1978), pp. 697-698 .

Chapters in Books

  1. S. Chandrasekharan, N.C. Perin, I.R. Wiechers, and R. Cook-Deegan, Public-Private Interactions in Genomic Medicine: Research and Development, in Genomic and Personalized Medicine, edited by Huntington F. Willard and Geoffrey S. Ginsburg (October, 2008), pp. 434-444, Elsevier .
  2. R. Cook-Deegan, K.N. Lohr, and J.H. Palmer, How Bioethics Can Inform Policy Decisions About Genetic Enhancement, in Altering Nature: Religion, Biotechnology and Public Policy, vol. 2 (2008), pp. 161-198 .
  3. R. Cook-Deegan, Gene Patents, in From Birth to Death and Bench to Clinic: The Hastings Center Bioethics Briefing Book for Journalists, Policymakers, and Campaigns (2008), pp. 69-72, Hastings Center .
  4. R.M. Cook-Deegan and M. McGeary, The Jewel in the Federal Crown? History, Politics and the National Institutes of Health, in History and Health Policy in the United States: Putting the Past Back In, edited by Rosemary A. Stevens, Charles E. Rosenberg, Lawton R. Burns (2006), New Brunswick: Rutgers University Press .
  5. J.G. Palmer and R. Cook-Deegan, National Policies to Oversee Inheritable Genetic Modifications Research, in Designing Our Descendants: The Promises and Perils of Genetic Modifications, edited by Audrey R. Chapman and Mark S. Frankel (2003), pp. 275-295, Baltimore, MD: Johns Hopkins University Press .
  6. R.M. Cook-Deegan, The Colossus of Codes, in Inspiring Science: Jim Watson and the Age of DNA, edited by John Inglis, Joseph Sambrook, and Jan Witkowski (2003), pp. 387-393, Cold Spring Harbor Press .
  7. R.M. Cook-Deegan, Gene Patents: Why Secrecy is Destructive to Innovation, in Chapter in Comercial Implications for Genomics (2002), Cambridge, MA: Healthtech Institute .
  8. R. Cook-Deegan, Medical Biotechnology, United States Policy Influencing Its Development, in Encyclopedia of Ethnical, Legal and Policy Issues in Biotechnology, edited by Thomas H. Murray and Maxwell J. Mehlman (2000), pp. 798-809, New York: John Wiley & Sons .
  9. R. Cook-Deegan, Government Policy and the Commercial Value of Academic Information, in AAAS Science and Technology Policy Yearbook 2000, edited by Teich AH, Nelson SD, McEnaney C., and Lita SJ (2000), pp. 273-289 .
  10. R. Cook-Deegan, The Genetics of Alzheimer's Disease: Some Future Implications, in Concepts of Alzheimer Disease: Biological, Clinical and Cultural Perspectives, edited by Peter J. Whitehouse, Konrad Maurer, and Jesse F. Ballenger (2000), pp. 269-290, Baltimore, MD: Johns Hopkins University Press .
  11. R. Cook-Deegan, National Policies Influencing Innovation Based on Human Genetics, in The Commercialization of Genetic Research: Ethical, Legal, and Policy Issues, edited by Tim Caulfield and Bryn Williams-Jones (1999), pp. 13-27, New York: Plenum (Based in part on a talk in Edmonton, Alberta, September 1998.) .
  12. R.M. Cook-Deegan, Some Questions Arising in the Commercial Development of Genetic Tests for Alzheimer's Disease, in Chapter 6 of Genetic Testing for Alzheimer's Disease: Ethnic and Clinical Issues, edited by S Post and P Whitehouse (1998), pp. 84-100, Baltimore, MD: Johns Hopkins University Press .
  13. R.M. Cook-Deegan, Confidentiality, Collective Resources, and Commercial Genomics, in Chapter 9 in Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era, edited by MA Rothstein (1997), pp. 161-183, New Haven, CT: Yale University Press .
  14. R.M. Cook-Deegan, Bioethics and the Federal Government: Some Implications for Psychiatric Genetics, in Chapter for Genetics and Mental Illness, edited by LL Hall (1996), pp. 189-218, New York, Plenum Press .
  15. R.M. Cook-Deegan, Genome Mapping and Sequencing, in Encyclopedia of Bioethics, edited by ET Reich, Editor-in-Chief; JC Fletcher, Genetics Section Editor; M Solberg, Project Editor (1995), pp. 1011-1019, New York: Macmillan .
  16. R.M. Cook-Deegan, Ethical Issues Arising in the Search for Neurological Disease Genes, Intractable Neurological Disorders, Human Genome Research, and Society (1994) (Proceedings of a conference held November 19-21, 1993, Fukui, Japan, N. Fujiki and D. Macer, Eds. Christchurch, NZ: Eubios Ethics Institute, 1994. 81-92. Japanese translation available. Tsukuba Science City, Japan: Eubios Ethics Institute, 1994.) .
  17. P.J. Whitehouse and R. Cook-Deegan, Epilogue, in Dementia, Contemporary Neurology Series (Philadelphia: F.A. Davis), edited by Peter J. Whitehouse, Ed., Fred Plum, Editor-In-Chief (1993), pp. 435-441 .
  18. R.M. Cook-Deegan, Trends in Science, Technology, and Drug Discovery, Chapter 5 of a report Pharmaceutical R&D: Costs, Risks, and Rewards (1993), pp. 105-134, Office of Technology Assessment, US Congress, Report 0TA-H-522 (Washington, DC: Government Printing Office) .
  19. R.M. Cook-Deegan, Roots of Controversy: Origins of the Human Genome Project (May 24-26, 1993) (Keynote address for international conference "El Derecho Ante el Proyector Genoma Humano (The Human Genome Project: Legal Aspects)" at the University of Deusto and the Diputacion Foral de Bizkaia in Bilbao, Spain, May 24-26, 1993. Reprinted in The Human Genome Project: Legal Aspects, Volume 1, including a chronology of the human genome project. Bilbao, Spain: Fundacion BBC, 1995. 67-89.) .
  20. R.M. Cook-Deegan and J.D. Watson, The Human Genome Project, in 1992 Yearbook of Science and Technology, edited by Sybil P. Parker, Editor-in-Chief (1992), pp. 204-205 and 207, New York: McGraw-Hill .
  21. R.M. Cook-Deegan, Genesis of the Human Genome Project, in Molecular Genetic Medicine, edited by T Friedmann, vol. I (1991), pp. 1-75, San Diego, CA: Academic Press .
  22. R.M. Cook-Deegan, The Human Genome Project: Formation of Federal Policies in the United States, 1986-1990, in Biomedical Politics, edited by K Hanna (1991), Washington, DC: National Academy Press (Commissioned by the Committee to Study Decision-making, Institute of Medicine, National Academy of Sciences.) .
  23. R.M. Cook-Deegan, H. Hu, and A. Shukri, Winds of Death: Iraqi's Use of Poison Gas Against Its Kurdish Population, in Chapter in Death Clouds: Saddam Hussein's Chemical War against the Kurds, edited by D Ala'aldeen (1991), Kurdish Scientific and Medical Association, London .
  24. R.M. Cook-Deegan, The Human Genome Project, in Preparing for Science in the 21st Century (1991), Washington, DC: Association of Academic Health Centers (Based on a talk to the Association of Academic Health Centers, Naples, FL, 4 November 1990.) .
  25. R.M. Cook-Deegan, Public Policy Implications of the Human Genome Project, Genetics, Ethics, and Human Values: Human Genome Mapping, Genetic Screening, and Gene Therapy (July 22-27, 1990) (Proceedings of the XXIVth CIOMS Conference, Tokyo and Inuyama City, Japan. Council for International Organizations of Medical Sciences (CIOMS). 56-71, 1991. (Served also as a rapporteur for Group C: Human Gene Therapy, in this volume, and assisted Alex Capron, Ronald Worton and Nancy Wexler in editing reports from Work Groups A and B.) .
  26. R.M. Cook-Deegan, Some Implications of Mapping the Human Genome (September, 1989) (Paper presented at an international meeting on mapping and sequencing the human genome, University of Bochum, Federal Republic of German, published as Medizinethische Materialien, Heft 47. Bochum, Germany: Ruhr- Universitat Bochum, Zentrum fur Medizinische Ethik. Translated into German and reprinted as "Herausforderungen bei DNS- Kartierung und-Sequenzierung" in Genomanalyse und Gentherapie, Hans-Martin Sass, Ed. (Heidelberg, Springer-Verlag, 1991, 171-196.) .
  27. R.M. Cook-Deegan, Hu H, and Shukri A, Winds of Death: Iraq's Use of Poison Gas against Its Kurdish Population (February, 1989) (Report of a Medical Mission to Turkish Kurdistan. Somerville, MA: Physicians for Human Rights. Reprinted with testimony from February 9, 1989, hearings before the Committee on Governmental Affairs in a report Proliferation of Chemical and Biological Weapons. Washington DC: Government Printing Office, 1989.) .
  28. R.M. Cook-Deegan, Changing Public Policy for Dementia Care, in Dementia Care: Patient, Family, and Community, edited by NL Mace (1989), pp. 374-392, Baltimore, MD: The Johns Hopkins University Press .
  29. R.M. Cook-Deegan and L.A. Winters-Miner, Appendix: Research bibliography on familial Alzheimer's disease, in Familial Alzheimer's Disease: Molecular Genetics and Clinical Perspectives, edited by GD Miner, RW Richter, JP Blass, JL Valentine, and LA Winters-Miner (1989), pp. 397-408, New York: Marcel Dekker .
  30. R.M. Cook-Deegan, Proposed Definitions, in Caring of Alzheimer's Patients: A Guide for Family and Healthcare Providers, edited by GD Miner, RW Richter, JP Blass, JL Valentine, and LA Winters-Miner (1989), New York: Plenum .
  31. R.M. Cook-Deegan, Alzheimer's Disease and Public Policy, in Cating for Alzheimer's Patients: A Guide for Family and Healthcare Providers, edited by GD Miner, RW Richter, JP Blass, JL Valentine, and LA Winters-Miner (1989), New York: Plenum .
  32. R.M. Cook-Deegan, The Physician and Technological Change, in The Physician as Captain of the Ship, edited by NMP King, LR Churchill, and AW Cross (1988), pp. 125-158, Boston: D Reidel (Presented at a symposium "The Physician as Captain of the Ship: A Critical Reappraisal," at the University of North Carolina, Chapel Hill, April 17-19, 1986.) .
  33. R.M. Cook-Deegan, Bioethik und Politik, in Bioethik in de USA, edited by HM Sass (1988), pp. 141-168, Berlin: Springer-Verlag (Translated by HM Sass and others at Zentrum fur Medizinische Ethik Bochum, Ruhr- Universitat, Bochum, Germany.) .
  34. R.M. Cook-Deegan, Ethical Analysis and Public Policy (March, 1987) (Paper for the Ministry of Science and Technology, Federal Republic of Germany; translated into German as "Bioethische Bewertung Im Auftrage Der US- Bundesregierung," Heft 13, Zentrum fur Medizinische Ethik Bochum, Ruhr-Universitat Bochum, Postfach 102 148 D-4630 Bochum 1, Germany, January 1988.) .
  35. R.M. Cook-Deegan, Finding a Voice for Bioethics in Public Policy: Federal Initiatives in the United States, 1974-1991, in Chapter in Consensus Formation in Medicine and Health Care, edited by HAMJ ten Have and HM Sass (1987), pp. 107-140, Kluwer Press .
  36. R.M. Cook-Deegan, Public Policy and Dementia: Implications for New Product Development, in Neurological Disorders: Recent Advances in Diagnostics and Drug Development (November, 1986), Yorktown Heights, NY: Communitech .

Book Reviews

  1. R.M. Cook-Deegan, Hype and Hope. Introductory essay to "Scientists' Bookshelf Special Edition: Books of Life, American Scientist, vol. 89 (Jan-Feb 2001), pp. 62-64 .
  2. R.M. Cook-Deegan, Review of Brain Policy: How the New Neurosceince Will Change Out Lives and Our Politics by Robert H. Blank, Cerebrum, vol. 1 (Spring, 1999), pp. 104-109 .
  3. R.M. Cook-Deegan, Review of the The Baltimore Case: A Trial of Politics, Science, and Character by Daniel Kevles, Recent Science Newsletter, vol. 1 (Spring, 1999), pp. 8-10 .
  4. R.M. Cook-Deegan, Review of Clone: The Road to Dolly and the Path Ahead by Gina Kolata, Issues in Science and Technology, vol. 14 (Spring, 1998), pp. 90-95 .
  5. R.M. Cook-Deegan, Review of The Moral Challenge of Alzheimer's Disease by Stephen Post, New England Journal fo Medicine, vol. 334 (May 2, 1996), pp. 1204 .
  6. R.M. Cook-Deegan, Review of Alzheimer's Disease Research: Ethical and Legal Issues, New England Journal of Medicine, vol. 327 (1992), pp. 60-61 .
  7. R.M. Cook-Deegan, A Landmark in Medical Genetics. Review of Ethnics and Human Genetics: A Cross Cultural Perspective, in Bioethics Books, edited by Werta and Fletcher, vol. 1 no. 4 (1990), pp. 75-77 .
  8. R.M. Cook-Deegan, Scientists and the Dawn of Industrial Pharmacology. Review of Academic Scientist and the Pharmaceutical Industry by John Swann, Medical Humanities Review, vol. 3 (January, 1989), pp. 84-86 .
  9. R.M. Cook-Deegan, Review of Biotechnology and the Human Genome, edited by Woodhead and Barnhart, Bioscience, vol. 39 (1989), pp. 402-403 .
  10. R.M. Cook-Deegan, Review of Invisible Frontiers by Stephen Hall and Natural Obsessions by Natalie Angier, Journal of the American Medical Association, vol. 261 (February 3, 1989), pp. 773-773 .

Op-eds

  1. D. Magnus, M. Cho, and R. Cook-Deegan, Genetic-Test Firms Must Follow Law, San Jose Mercury-News (July 11, 2008) .

Other

  1. M. Angrist, S. Chandrasekharan, C. Heaney, and R. Cook-Deegan, Intellectual Property and Its Impact on Genetic Testing for Long QT Syndrome (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  2. S. Chandrasekharan, C. Heaney, T. James, C. Conover, and R.M. Cook-Deegan, Impact of Gene Patents and Licensing Practices on Access to Genetic Testing for Cystic Fibrosis (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  3. S. Chandrasekharan, E. Pitlick, C. Heaney, and R. Cook-Deegan, Impact of Patents and Licensing on Access to Genetic Testing for Hereditary Hemochromatosis (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  4. R. Cook-Deegan,C. DeRienzo, J. Carbone, S. Chandrasekharan, C. Heaney, and C. Conover, Impact of Gene Patents on Access to Genetic Testing for Inherited Susceptibility to Cancer: Comparing Breast and Ovarian Cancers to Colon Cancers (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  5. A. Colaianni, S. Chandrasekharan, and R. Cook-Deegan, Impact of Patents and Licensing Practices on Access to Genetic Testing and Carrier Screening for Tay-Sachs and Canavan Disease (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  6. A. Powell, S. Chandrasekharan, and R. Cook-Deegan, Spinocerebellar Ataxia: Patient and Health Professional Perspectives on Whether and How Patents Affect Access to Clinical Genetic Testing (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  7. K. Skeehan, C. Heaney, and R. Cook-Deegan, Impact of Patents and Licensing Practices on Access to Genetic Testing for Alzheimer’s Disease (December, 2008) (Peer-reviewed case study submitted for discussion at the Secretary’s Advisory Committee on Genetics, Health, and Society.) .
  8. J. Staples, R. Cook-Deegan, and G.S. Ginsburg, The Role of the Academic Medical Center in Advancing Personalized Health Care, in Personalized Health Care: Pioneers, Partnerships, Progress (November, 2008), pp. 75-99 (Commissioned paper in report prepared by the Initiative on Personalized Health Care, Department of Health and Human Services.) .
  9. R.M. Cook-Deegan, Blogger, Issues in Science and Technology (online version of the journal only) (Spring-Winter, 2006) (Administered by the Green Center at University of Texas, Dallas, and the National Academies.) .
  10. R.M. Cook-Deegan, J.C. Venter, W. Gilbert, J. Mulligan, and B.K. Mansfield, DNA Sequencing Conference, II. Meeting summary (2006) .
  11. R.M. Cook-Deegan, J.C. Venter, M.L. Pearson, and B.K. Mansfield, The Genome Project and the Pharmaceutical Industry. Meeting summary (2006) .
  12. A. So, A.R. Rai, and R.M. Cook-Deegan, Intellectual Property Rights and Technology Transfer: Enabling Access for Developing Countries, Submitted to the World Health Organization. (Spring, 2005) (Commissioned Report for the World Health Organization Commission on Intellectual Property Rights, Innovation, and Public Health.) .
  13. R. Hubbard, R.M. Cook-Deegan, J.C. Venter, and J.Q. Wilson, The Ethical Implications of the New Genetics: Does Research on Genes Require a New Ethical Paradigm? 1974-2005 PRIM&R, Through the Years, Three Decades of Protecting Human Subjects, edited by Paula Knudson, PRIM&R (2005), pp. 257-260 .
  14. R.M. Cook-Deegan, How Health Research Got So Big in the United States, Research Policy Alert (formerly "The Blue Sheet" and Washington Fax) (June 22, 2005) (Experts Forum (on line resource), (posted for several weeks as a special feature.) .
  15. R.M. Cook-Deegan, R. Berkelman, E.M. Davidson, S. Finder, E. Heitman, M.C. Kelley, N.M.P. King, R. Moseley, J.C. Thomas, S.J. Tilden, and N.M. Vangsnes, Letter on "Issues in Biosecurity and Biosafety, Science, vol. 308 (June 24, 2005), pp. 1867-1868 .
  16. R.M. Cook-Deegan (Committee member, principal writer of a few short sections; main writers were Kathi Hanna and Michael McGeary), Strategies To Leverage Research Funding: Guiding DOD's Peer-Reviewed Medical Research Programs, edited by Michael McGeary and Kathi E. Hanna, National Academy of Science Report (2004), Washington, DC: The National Academies Press (This study was supported by the National Academy of Sciences and the U.S. Department of Defense.) .
  17. R. Cook-Deegan and B. Hogan, The Future of Human Cloning: Can We Reap the Benefits of Therapeutic Cloning without Crossing Ethical Lines?, DukeMed Magazine (Spring/Summer 2003), pp. 46-47 .
  18. R. Cook-Deegan, The Urge to Commercialize: Interactions between Public and Private Research and Development (2003), Washington, D.C.: National Academy Press (Section in Proceedings of the Symposium on the Role of Scientific and Technical Data and Information in the Public Domain, National Academy of Sciences..) .
  19. R. Cook-Deegan, Alzheimer's Disease: Tracing the Genetic Link, Saturday Evening Post (May-June 1999), pp. 22-27, 89-92 (excerpt chapter one of The Gene Wars with an interview and update with Patrick Perry.) .
  20. R.M. Cook-Deegan, The Urge to Commercialize: Interactions between Public and Private Research and Development, Section in The Role of Scientific and Technical Data and Information in the Public Domain: Proceedings of a Symposium (2003), pp. 87-94, National Research Council of the National Academies. Washington, DC: National Academy Press .
  21. R.M. Cook-Deegan, The HHMI Presence in Policy (March, 2002) (A background paper prepared for the Howard Hughes Medical Institute.) .
  22. R.M. Cook-Deegan, Walters L., Pressman L, Pau D, McCormack S, Gatchalian J, and Burgess R, Preliminary Data About U.S. DNA-Based Patents and Plans for a Survey of Licensing Practices (September 5-8, 2002) (Paper prepared for the DNA Sampling Conference in Montreal, Canada.) .
  23. R.M. Cook-Deegan, CellPro: a case study in intellectual property related to cancer therapeutics, background memo (June, 2001) (National Cancer Policy Board Reports.) .
  24. R.M. Cook-Deegan, Preserving Public Trust: Accrediting Human Research Participant Protection Programs, Institute of Medicine Reports (2001), Washington, DC: National Academy Press (http://books.nap.edu/catalog/10085.html. (Primary staff writer for fast-track project; Chair, D Federman; study director, L Rodriguez; Division of Health Sciences Policy, Institute of Medicine.) .
  25. R.M. Cook-Deegan, Final Report to the World Health Organization and Global Forum for Health Research (September, 2000) (Also posted at http://wwww.stanford.edu/class/siw198q/genomics.) .
  26. R.M. Cook-Deegan, Background paper for World Health Organization, Geneva Switzerland: Opportunities for WHO in Genomics (July 12, 2000) .
  27. A. Alwan and Cook-Deegan R, Memo on Genomics to World Health Organization Director General Gro Brundtland and her Cabinet (July 3, 2000) .
  28. R.M. Cook-Deegan, A. Johnson, and C. Chan, World Survey of Genomics Research Funding, Interim Report, Submitted to the World Health Organization and Global Forum for Health Research (July, 2000) (with presentation of summary findings to the Office for Economic Cooperation and Development, Paris.) .
  29. R.M. Cook-Deegan, State Programs Can Reduce Tobacco Use, National Cancer Policy Board Reports (February, 2000) (http://books.nap.edu/catalog/9762.html.) .
  30. R.M. Cook-Deegan, Genomics and drug development: Some examples from cancer research (October 26, 2000) (Presented to the Foundacíon de Ciencias de Salud, Madrid; reprinted in Foundational annual report and conference summary. http://www.fcs.es/fcs/esp/interiores/conferen cias/ciencia/ciencia14/index 14.htm.) .
  31. Expanding Medicare Reimbursements for Clinical Trials, edited by H Aaron and H Gelband, National Cancer Policy Board Reports (December, 1999), Washington, DC: National Academy Press (http://books.nap.edu/catalog/9742.html. (Supervision only, no authorship. This study was administratively housed with the Board, but the report was formally from IOM as a whole.) .
  32. R.M. Cook-Deegan, Moderator of online forum on gene therapy, American Scientist (May, 1999) (http://www.amsci.org/amsci/editors/bcdcomment s.html.) .
  33. Ensuring Quality Cancer Care, edited by M Hewitt and J Simone, National Cancer Policy Board Reports (April, 1999), Washington, DC: National Academy Press (http://books.nap.edu/catalog/6467.html. (Supervision and editing, no authorship.) .
  34. R.M. Cook-Deegan, Government Policy and the Commercial Value of Academic Information (March, 1999) (Based on a talk to the AAAS-MIT symposium "Secrecy in Science: Exploring University, Industry, and Government Relationships," at Kresge Auditorium, MIT campus, http://www.aaas.org/spp/secrecy/Presents/cook dee.htm.) .
  35. R.M. Cook-Deegan, "Inner Sanctum" letter commenting on NIH peer review, Science, vol. 284 (April 23, 1999), pp. 589 (http://www.sciencemag.org/cgi/content/summary/284/ 5414/589a.) .
  36. R.M. Cook-Deegan (principal staff writer/editor), Taking Action to Reduce Tobacco Use (1998), National Academy Press (http://nap.edu/readingroom/books/tobacco.) .
  37. R.M. Cook-Deegan, Commentary on "Can Patents Deter Innovation? The Anticommons in Biomedical Research" by Michael A. Heller and Rebecca S. Eisenberg, Science, vol. 280 (1998), pp. 698-701 (http://www.sciencemag.org/feature/data/98046 5/cook_deegan.shl.) .
  38. R.M. Cook-Deegan (staff author), Background paper on Tobacco Control, National Cancer Policy Board Reports (July, 1997) .
  39. R.M. Cook-Deegan, Do Research Moratoria Work? Lessons from Fetal Research, Gene Therapy, and Recombinant DNA Research (April, 1997) (Background paper for the National Bioethnics Advisory Commission pertinent to its deliberations on human cloning. http://www.georgetown.edu/research/nrcbl/nbac /pubs/cloning2/cc8.pdf.) .
  40. R.M. Cook-Deegan (staff author), Letter on tobacco control to Donna Shalala, Bruce Reed, and Members of Congress from the National Cancer Policy Board (July 19, 1997) .
  41. R.M. Cook-Deegan, Letter on "Insulin Gene Patent Litigation, Science, vol. 278 (1997), pp. 560-561 .
  42. F. Press, N. Metzger, and R. Cook-Deegan, Letter re Robinson's commentary "Budget Battles, Issues in Science and Technology, vol. 12 (Fall, 1996), pp. 5-6 .
  43. R.M. Cook-Deegan, Letter re "Research Funding", Issues in Science and Technology, vol. 12 (Summer, 1996), pp. 18 .
  44. R.M. Cook-Deegan, Merit Review of Federally Funded Science and Technology, White Paper for the Council of the National Academy of Sciences (February, 1996) .
  45. R.M. Cook-Deegan, Background Paper on Competitive Merit Review prepared for the National Academy of Sciences' Council (February, 1996) .
  46. Charo, RA, Cook-Deegan R, Eisenberg RS, Geller G and Finneran K, The Politics of Genetic Testing, Issues in Science and Technology, vol. XIII (1996), pp. 48-54 (based on a March 1996 roundtable discussion sponsored by North Lake College, Dallas, Texas.) .
  47. R.M. Cook-Deegan, Walters L, Goldstein D, and McCormack S, Letter on "Ownership of Human Genes", Nature, vol. 382 (July 4, 1996), pp. 17-18 .
  48. R.M. Cook-Deegan, Survey of Reports on Federal Laboratories (May, 1995) (Background paper for the Committee on Criteria for Federal Support of Research and Development, National Academy of Sciences, May 1995 (revised July 1995). Available through the Commission on Physical Sciences, Mathematics, and Applications, National Research Council, Washington, DC.) .
  49. R.M. Cook-Deegan, Previous Analyses of the U.S. R&D Allocation Process (January, 1995) (Background paper for the Committee on Criteria for Federal Support of Research and Development, National Academy of Sciences, January 1995. Available through the Commission on Physical Sciences, Mathematics, and Applications, National Research Council, Washington, DC.) .
  50. R.M. Cook-Deegan, Allocating Federal Funds for Science and Technology (1995), National Academy Press (Senior Program Officer; staff writer for some sections and executive summary, and several background papers. Committee chair, Frank Press study director, Norman Metzger. Other staff writers: Christopher Hill, Michael McGeary, and Julie Esanu.) .
  51. The Development of Medications for the Treatment of Opiate and Cocaine Addictions, edited by CE Fulco, CT Liverman, and LE Early (1995), Washington, DC: National Academy Press (Supervision only, no authorship.) .
  52. Federal Regulation of Methadone Treatment, edited by Richard A. Rettig and Adam Yarmolinsky (1995), Washington, DC: National Academy Press (Supervision only, no authorship.) .
  53. R.M. Cook-Deegan, Introduction. In Lois Bristow, Will I Be Next? Bea Gorman's Life Story (1995), pp. 13-14, Acampo, CA: Hope Warren Press .
  54. R.M. Cook-Deegan, Some Issues in Federal Technology Transfer and Ways to Study Them (November, 1994) (White paper prepared for the Office of Science and Technology Policy, Executive Office of the President, as background for a November 1994 meeting organized by OSTP with assistance from the Office of Extramural Research, National Institutes of Health at the National Academy of Sciences.) .
  55. R.M. Cook-Deegan, Survey of Genome Research Corporations (March, 1994) (Contract report on financial and technical background of genome research startup firms prepared for the Office of Technology Assessment, US Congress, for its report on DNA patenting.) .
  56. R.M. Cook-Deegan, Introduction: Genes and Families (1994) (Commentary on articles by R Alta Charo and R Shinn in The Genetic Frontier: Ethics, Law and Policy, MS Frankel and A Teich, Eds. Washington, DC: American Association for the Advancement of Science, 1994, 3-7.) .
  57. R.M. Cook-Deegan (Coauthor of first and last chapters), Growing Up Tobacco Free: Preventing Nicotine Addiction in Children and Youths, edited by BS Lynch and RJ Bonnie (1994), Washington, DC: National Academy Press (Overall supervision. Main writers were study director Barbara Lynch and committee member Richard Bonnie.) .
  58. R.M. Cook-Deegan (wrote one section of one chapter biology), AIDS and Behavior: An Integrated Approach, edited by JD Auerbach, C Wypijewska, H Keith and H Brodie (1994), Washington, DC: National Academy Press (Main writers were study director Judith Auerbach and her research associate Christina Wypiejewska.) .
  59. by R Pool for the Institute of Medicine, The Dynamic Brain (1994), Washington, DC: National Academy Press (Supervision and editing only.) .
  60. Development of Anti-Addiction Medications: Issues for the Government and Private Sector, edited by CE Fulco, CT Liverman, and LE Early (1994), Washington, DC: Divsion of Biobehavioral Sciences and Mental Disorders, Institute of Medicine (Supervision only.) .
  61. R.M. Cook-Deegan (Wrote one chapter section on specific disorders and sections of two policy chapters and aided in editing), Reducing Risks of Mental Disorders: Frontiers of Preventive Intervention Research, edited by PJ Mrazek and RJ Haggerty (1994), Washington, DC: National Academy Press (main staff author/editor was study director Patricia Mrazek.) .
  62. by S Ackerman for the Institute of Medicine, Discovering the Brain (1992), Washington, DC: National Academy Press (Ghost author of James D. Watson preface.) .
  63. R.M. Cook-Deegan, Assessing Future Research Needs: Mental and Addictive Disorders in Women, edited by C Pechura (1991), Washington, DC: Division of Health Sciences Policy and Division of Biobehavioral Sciences and Mental Disorders, Institute of Medicine (No authorship. Main writer was study director Constance Pechura.) .
  64. R.M. Cook-Deegan, Poison Gas Attacks Against Iraqi Kurds, Testimony before the Human Rights Caucus, US Congress (October 24, 1989) .
  65. Schaller JM and Cook-Deegan R, Panama 1987: Health Consequences of Police and Military Actions, Physicians for Human Rights, Somerville, MA (April, 1988) .
  66. R.M. Cook-Deegan (project director), Mapping Our Genes - Genome Projects: How Big? How Fast? (April, 1988) (Reprinted by The Johns Hopkins University Press, Baltimore, Maryland, 1988; and Human Sciences Press, New York, 1988. Received Notable Documents of 1988 Award. National Library Association, 1989. (Author of executive summary and several chapters. Overall project director. Other staff authors: Patricia Hoben, Gladys White, Jacqueline Courteau, and David Guston. Report available at: http://www.wws.princeton.edu/~ota/.) .
  67. R.M. Cook-Deegan, Coordination of Genome Projects (1988), pp. 77-89 (testimony and comments before the Subcommittee on Natural Resources, Agriculture Research and Environment and the Subcommittee on Science, Research and Technology of the Committee on Science, Space and Technology, U.S. House of Representatives, July 14, 1988. Printed for the Committee as H.R. 4502 and S. 1966, The Biotechnology Competitiveness Act, Committee Print No. 138. Washington, DC: Government Printing Office, 1988.) .
  68. R.M. Cook-Deegan, Genome Projects: Issues Before Congress, testimony and statement before the Subcommittee on Oversight and Investigations (April 27, 1988) (Printed in OTA Report on the Human Genome Project: Serial No. 100-123, Committee on Energy and Commerce, House of Representatives, U.S. Congress. Washington, DC: Government Printing Office, 1988. 17-26, 29-36.) .
  69. R.M. Cook-Deegan (project director), Losing a Million Minds: Confronting the Tragedy of Alzheimer's Disease and Other Dementias (April, 1987) (Reprinted by JP Lippincott, Philadelphia, Pennsylvania, as Confronting Alzheimer's Disease and Other Dementias, 1988, and by Human Sciences Press, 1988 under its original title. Listing among 20 Federal reports in Godort "Notable Documents" for 1987, and one of 17 "Historic Documents, 1987" by Congressional Quarterly. (Project director and author of executive director and chapter 3. Other chapter authors: Katie Maslow, L. Val Giddings, Dana Gelb, Teresa Schwab Myers, David Chavkin, Mary Ann Baily, Catherine Hawes, and Nancy Mace. Report available at http://www.wws.princeton.edu/~ota/.) .
  70. R.M. Cook-Deegan, Epidemiology, in session of Alzheimer's disease (January, 1987) (Talk and paper for the Intensive Course in Geriatric Medicine sponsored by the American College of Physicians, UCLA Academic Geriatric Resource Center, and UCLA Multicampus Division of Geriatric Medicine and Psychiatric Disorders of Late Life sponsored by the UCLA Clinical Research Center for the Study of Psychopathology in the Elderly, UCLA Neuropsychiatric Institute, UCLA Department of Psychiatry, and American Association for Geriatric Psychiatry, Los Angeles, CA: UCLA.) .
  71. R.M. Cook-Deegan, Recent Progress on Services for Alzheimer's Disease and Other Dementias (August 19, 1987), pp. 28-36, Government Printing Office (Statement before the Subcommittee on Aging, Senate Committee on Labor and Human Resources, US Congress, S. Hrg. 10-321.) .
  72. R.M. Cook-Deegan, Economic Implications of Gene Therapy and Gene Mapping (December, 1986) (Paper for the Office of Economic Cooperation and Development, Paris.) .
  73. R.M. Cook-Deegan, Federal Support for Research on Dementia (July 22, 1986), pp. 95-125, Government Printing Office (Statement and replies to questions in a hearing before the Subcommittee on Aging, Senate Committee on Labor and Human Resources, US Congress. S Hrg 99-913.) .
  74. R.M. Cook-Deegan, Care of the Patient with Dementia (January 16-17, 1986) (Paper presented to the California Task Force on Alzheimer's Disease, University of California at San Francisco.) .
  75. R.M. Cook-Deegan, Juengst E, Wexler N, Baskin Y, Herskowitz L, Perlman D, Risser J, Gene Therapy: Ethics and Policy, Human Gene Therapy, transcript of the Media Outreach Program Roundtable, Stanford University (February 13, 1986), New York: Scientists' Institute for Public Information .
  76. R.M. Cook-Deegan, Letter: The Medical Profession and the Prevention of Torture, New England Journal of Medicine, vol. 314 (1986), pp. 587 .
  77. R.M. Cook-Deegan and T Schwab Myers, Office of Technology Assessment: Dying with Dignity: Difficult Times, Difficult Choices (October, 1985), pp. 14-17, Government Printing Office (Report of the Select Committee on Aging, US House of Representatives. Committee Publication Number 99-518.) .
  78. R.M. Cook-Deegan (Senior Analyst), Office of Technology Assessment, US Congress: Long-Term Social Consequences of Artificial Intelligence, Workshop transcript (July, 1985) .
  79. R.M. Cook-Deegan (Senior analyst, with primary responsibility for sections on biomedical research, chronic disorders, and medications), Technology and Aging in America (June, 1985) (Report available at http://www.wws.princeton.edu/~ota/.) .
  80. R.M. Cook-Deegan, Alzheimer disease and other disorders causing dementia (1985), pp. 71-98, Government Printing Office (In testimony before the Subcommittee on Investigations and Oversight of the Committee on Science and Technology, US House of Representatives, August 30, 1984. Published in Committee Print Number 135 Alzheimer's Disease Research.) .
  81. R.M. Cook-Deegan (Study director and principal author), Human Gene Therapy (December, 1984) (Report available at http://www.wws.princeton.edu/~ota/.) .
  82. Sisk JE, Cook-Deegan R, Dougherty D, Gelband H, Miike LH, Halpern S, The use of immunosuppressive drugs in kidney transplantation (March, 1984) (Staff memorandum, Office of Technology Assessment, US Congress.) .
  83. R.M. Cook-Deegan (Study director and principal author), Impacts of Neuroscience (March, 1984) (Reports available at http://www.wws.princeton.edu/~ota/.) .
  84. R.M. Cook-Deegan (Special Contributor. Author and coauthor of a few short chapter sections and background papers), Commercial Biotechnology: An International Analysis (January, 1984) (Reprinted by the North Carolina Biotechnology Center, Durham, NC, and Pergamon Press, Elmwood, NY. Main staff writers: Nanette Newell, Susan Clymer, Geoffrey Karny, Thomas Bugbee, James A. Thomas, Louise Williams, and Raymond Zlinskas. Report available at http:www.wws.princeton.edu/~ota/.) .

Submitted

  1. C. Heaney, J. Carbone, E.R. Gold, T. Bubela, C.M. Holman, A. Colaianni, T. Lewis, and R. Cook-Deegan, The Perils of Taking Property Too Far, Stanford Journal of Law, Science & Policy (November, 2008) .
  2. R.M. Cook-Deegan and A.K. Rai, DNA Sequence Patents Are Not In the Grave Yet (Letter), Nature Biotechnology (October, 2008) .
  3. D. Magnus, M.K. Cho, and R. Cook-Deegan, US Regulation of Direct-to-Consumer Genetic Tests, Genome Medicine (August, 2008) .
  4. R.M. Cook-Deegan and N. Prabhakar, The Context for Secrecy and Conflicts between Commercial and Scientific Roles in Academic Health Research, in Ethical Issues in the Management of Financial Conflicts of Interest in Biomedical Research (2005) (Chapter submitted to The Hastings Center for a report and book on conflicts of interest in health research.) .

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