Associates Directory Listing

search PubMed.

Refereed Publications

  1. Messias, D. K. H. and Gilliss, C. L. and Sparacino, P. S. A. and Tong, E. M. and Foote, D., Stories of transition:  parents recall the diagnosis of congenital heart defect, Family Systems Medicine, vol. 13 no. 3-4 (Fall-Winter, 1995), pp. 367-377 [doi]
    (last updated on 2011/01/30)

    This study reports the recollected stories of eight parents regarding their experiences of having an infant diagnosed with a congenital heart defect. The qualitative research design incorporated interactive interviews and thematic data analysis, using grounded theory techniques. The results describe various aspects of the parents' transitional experience: something wrong, illusive normality, rude awakening, managing uncertainty, new meanings, and taking stock. Implications are drawn for family practitioners as facilitators of this complex transition.