Brief Bio

Sharron Docherty, Associate Professor, joined the faculty of the Duke University School of Nursing in 2002. She has practiced as a Pediatric Nurse Practitioner and served as the director of the pediatric acute/chronic care nurse practitioner specialties from 2002-2010. She received her BScN from the University of Windsor, her MScN from the University of Western Ontario, and earned her PhD in Nursing at UNC-Chapel Hill in 1999.

Dr. Docherty is the Co-Director of the ADAPT Center for Excellence in Cognitive/Affective Symptom Science and a Senior Scientist in the Oncology Nursing Center of Excellence at the Duke Cancer Institute. At UNC-CH, she is adjunct faculty in School of Nursing and mentor faculty for the Center for Developmental Science. Dr. Docherty is a Fellow of the American Academy of Nursing. She is also a member of NAPNAP (National Association of Pediatric Nurse Practitioners), Society for Research in Child Development, Southern Nursing Research Society, and Sigma Theta Tau.

Academic Program Affiliations

Education

Professional Certifications

Research Interests

Awards and Honors

• 2014 2014 SNRS Mid-Career Researcher Award, Southern Nursing Research Society (SNRS)

• 2013 Fellow, American Academy of Nursing

• 2008 Donna Wong Pediatric Nursing Writers Award, Pediatric Nursing Journal

• 2000 Participant, Serrambi, Brazil Summer School, Center for Developmental Science

• 1997 Elizabeth Scott Carrington Scholarship, School of Nursing ($2500), University of North Carolina at Chapel Hill

• 1997 Predoctoral Training Fellowship, Carolina Consortium on Human Development ($8000), University of North Carolina at Chapel Hill ($8000)

• 1996 Linda Waring Matthews Oncology Nursing Scholarship, UNC School of Nursing

• 1995 Cancer Education Program Assistantship, UNC-CH, Lineberger Comprehensive Cancer Center

• 1994 Dr. Alfreda Simons Kartha Excellence in Nursing Education Award, Sigma Theta Tau International Honour Society of Nursing - Iota Omicron Chapter

• 1994 Faculty of Nursing Doctoral Study Award ($1000), University of Western Ontario

• 1994 Hospital for Sick Children Foundation Fellowship, Canadian Nurses Foundation

• 1989 Inducted, Sigma Theta Tau, Iota Omicron Chapter

• 1985 Undergraduate Class Valedictorian, University of Windsor, University of Windsor

Areas of Expertise

• Pediatric Nursing
• Research Methods

Areas of Interest

• Quality of Life of Children and Families with Life-Threatening Illness
• a. Substantive:
• • Parental Caregivers of Children Post Stem Cell Transplant
• • Symptom Distress in Children with Cancer
• • Symptom Distress in Chronically Ill Children
• • Decision Making for Children with Life-Threatening Illnesses
• • Palliative Care for Children with Life-Threatening Illnesses
• b. Methodological
• • Longitudinal Designs and Analysis
• • Case Study Design and Analysis
• • Qualitative and Mixed Method Design and Analysis
• • Visualization Methods of Analysis
• • Biological Markers of Stress in Ill Children
• • Interviewing Children

Representative Publications

• 2015 -- Pubmed # 26250061 Redeker, N. S., Anderson, R., Bakken, S., Corwin, E., Docherty, S., Dorsey, S. G., Heitkemper, M., McCloskey, D. J., Moore, S., Pullen, C., Rapkin, B., Schiffman, R., Waldrop-Valverde, D., Grady, P. Advancing Symptom Science Through Use of Common Data Elements. J Nurs Scholarsh. September, 2015; 47(5); 379-88 PMCID: PMC4618317

• 2015 -- Pubmed # 26210197 Docherty, S. L., Kayle, M., Maslow, G. R., Santacroce, S. J. The Adolescent and Young Adult with Cancer: A Developmental Life Course Perspective. Semin Oncol Nurs. August 1, 2015; 31(3); 186-96

• 2015 -- Pubmed # 25647829 Anderson, R. A., Bailey Jr, D. E., Wu, B., Corazzini, K., McConnell, E. S., Thygeson, N. M., Docherty, S. L. Adaptive leadership framework for chronic illness: framing a research agenda for transforming care delivery. ANS Adv Nurs Sci. April-June, 2015; 38(2); 83-95 PMCID: PMC4417005

• 2015 -- Pubmed # 25721716 Brooks, J. L., Holditch-Davis, D., Docherty, S. L., Theodorou, C. S. Birthing and Parenting a Premature Infant in a Cultural Context. Qual Health Res. February, 2015 Epub ahead of print;

• 2014 -- Pubmed # 25057001 McLaughlin, C. A., Hockenberry, M. J., Kurtzberg, J., Hueckel, R., Martin, P. L., Docherty, S. L. Standardization of health care provider competencies for intrathecal access procedures. J Pediatr Oncol Nurs. Nov-Dec, 2014; 31(6); 304-16

• 2014 -- Pubmed # 25365282 Caiola, C., Docherty, S. L., Relf, M., Barroso, J. Using an intersectional approach to study the impact of social determinants of health for African American mothers living with HIV. ANS Adv Nurs Sci. Oct-Dec, 2014; 37(4); 287-98

• 2014 -- Allen, K. A., Brandon, D. H., Holditch-Davis, D., Cotton, C. M., Docherty, S. L. Parent and provider decision-making for infants with hypoxic-ischemic encephalopathy Journal of Pregnancy and Child Health. August, 2014; 1 106

• 2014 -- Pubmed # 25054525 Waterhouse, J., Bandisode, V., Brandon, D., Olson, M., Docherty, S. L. Evaluation of the use of a stabilization device to improve the quality of care in patients with peripherally inserted central catheters. AACN Adv Crit Care. Jul-Sep, 2014; 25(3); 213-20

• 2014 -- Pubmed # 25102209 Kelley, T., Docherty, S., Brandon, D. Letter to the editor. ANS Adv Nurs Sci. July, 2014; 37(3); 192

• 2014 -- Pubmed # 24222509 Shepperd, J. A., Novell, C. A., O'Neill, S. C., Docherty, S. L., Sanderson, S. C., McBride, C. M., Lipkus, I. M. Contemplating genetic feedback regarding lung cancer susceptibility. Ann Behav Med. June, 2014; 47(3); 395-403 PMCID: PMC4008648

• 2014 -- Pubmed # 24759312 Brandon, D., Ryan, D., Sloane, R., Docherty, S. L. Impact of a pediatric quality of life program on providers' moral distress. MCN Am J Matern Child Nurs. May-June, 2014; 39(3); 189-97

• 2014 -- Pubmed # 24529903 Spratling, R., Pickler, R. H., Calamaro, C., Dale, J. C., Docherty, S., Goodhue, C. J., Kilanowski, J., McCarthy, A. M., O'Laughlen, M. C., Sadler, L. S., Small, L., Speer, K., Thomas, T., Van Cleve, S., D'Auria, J., Jones, D. C. NAPNAP research agenda: 2014-2019. J Pediatr Health Care. May-June, 2014; 28(3); 272-5

• 2014 -- Pubmed # 24655938 Adams, J. A., Anderson, R. A., Docherty, S. L., Tulsky, J. A., Steinhauser, K. E., Bailey Jr, D. E. Nursing strategies to support family members of ICU patients at high risk of dying. Heart Lung. March, 2014;

• 2014 -- Pubmed # 24469862 Robb, S. L., Burns, D. S., Stegenga, K. A., Haut, P. R., Monahan, P. O., Meza, J., Stump, T. E., Cherven, B. O., Docherty, S. L., Hendricks-Ferguson, V. L., Kintner, E. K., Haight, A. E., Wall, D. A., Haase, J. E. Randomized clinical trial of therapeutic music video intervention for resilience outcomes in adolescents/young adults undergoing hematopoietic stem cell transplant: A report from the Children's Oncology Group. Cancer. March, 2014; 120(6); 909-17 PMCID: PMC3947727

• 2014 -- Pubmed # 24556984 Sanderson, S. C., McBride, C. M., O'Neill, S. C., Docherty, S., Shepperd, J., Lipkus, I. M. Young Smokers' Interpretations of the Estimated Lung Cancer Risk Associated with a Common Genetic Variant of Low Penetrance. Public Health Genomics. February 19, 2014;

• 2014 -- Pubmed # 24582896 Schweitzer, M., Aucoin, J., Docherty, S. L., Rice, H. E., Thompson, J., Sullivan, D. T. Evaluation of a discharge education protocol for pediatric patients with gastrostomy tubes. J Pediatr Health Care. February, 2014; 28(5); 420-8

• 2013 -- Pubmed # 24139063 Wooden, S., Docherty, S., Plaus, K., Kusek, A., Vacchiano, C. Exploration of Specialty Certification for Nurse Anesthetists: Nonsurgical Pain Management as a Test Case. Pain Manag Nurs. October, 2013, Epub ahead of print;

• 2014 -- Hendricks-Ferguson, V. L., Cherven, B. O., Burns, D. S., Docherty, S. L., Phillips-Salimi, C. R., Roll, L., Stegenga, K. A., Stickler, M. D., Haase, J. E. Dataset : Recruitment Article - Smart study February, 2014;

• 2013 -- Pubmed # 24169113 Kelley, T., Docherty, S., Brandon, D. Information needed to support knowing the patient. ANS Adv Nurs Sci. Oct-Dec, 2013; 36(4); 351-63

• 2013 -- Pubmed # 23972784 Pickler, R. H., Calamaro, C., Docherty, S., Goodhue, C. J., Magee, T., McCarthy, A. M., Sadler, L., Small, L., Spratling, R., Van Cleve, S. N., D'Auria, J., Jones, D. C. NAPNAP research agenda revisions: preliminary survey results. J Pediatr Health Care. Sep-Oct, 2013; 27(5); 390-4

• 2013 -- Pubmed # 24102024 Roll, L., Stegenga, K., Hendricks-Ferguson, V., Barnes, Y. J., Cherven, B., Docherty, S. L., Robb, S. L., Haase, J. E. Engaging nurses in research for a randomized clinical trial of a behavioral health intervention. Nurs Res Pract. September, 2013; 2013 183984 PMCID: PMC3786524

• 2013 -- Pubmed # 23767335 Horigan, A. E., Schneider, S. M., Docherty, S., Barroso, J. The experience and self-management of fatigue in patients on hemodialysis. Nephrol Nurs J. March-April, 2013; 40(2); 113-22; quiz 123 PMCID: PMC3703392

• 2013 -- Pubmed # 23332481 Docherty, S. L., Robb, S. L., Phillips-Salimi, C., Cherven, B., Stegenga, K., Hendricks-Ferguson, V., Roll, L., Donovan Stickler, M., Haase, J. Parental perspectives on a behavioral health music intervention for adolescent/young adult resilience during cancer treatment: Report from the Children's Oncology Group. J Adolesc Health. February, 2013; 52(2); 170-8

• 2013 -- Pubmed # 22888806 Shepperd, J. A., Lipkus, I. M., Sanderson, S. C., McBride, C. M., O'Neill, S. C., Docherty, S. Testing different communication formats on responses to imagined risk of having versus missing the GSTM1 gene. J Health Commun. January, 2013; 18(1); 124-37 PMCID: PMC3543503

• 2013 -- Pubmed # 23316896 Uhl, T., Fisher, K., Docherty, S. L., Brandon, D. H. Insights into patient and family-centered care through the hospital experiences of parents. J Obstet Gynecol Neonatal Nurs. January 1, 2013; 42(1); 121-31

• 2012 -- Pubmed # 22414540 Kassmann, B. P., Docherty, S. L., Rice, H. E., Bailey Jr, D. E., Schweitzer, M. Telephone follow-up for pediatric ambulatory surgery: parent and provider satisfaction. J Pediatr Nurs. December, 2012; 27(6); 715-24

• 2012 -- Docherty, S. L., Barfield, R., Thaxton, C., Brandon, D. Quality of life for children living with chronic or complex diseases (Chapter 18). In Wong’s Essentials of Pediatric Nursing (9th Ed.), edited by Hockenberry, M. J. & Wilson, D. October, 2012; St. Louis, MO: Elsevier Mosby.

• 2012 -- Pubmed # 23641169 Docherty, S. L., Thaxton, C., Allison, C., Barfield, R. C., Tamburro, R. F. The nursing dimension of providing palliative care to children and adolescents with cancer. Clin Med Insights Pediatr. September, 2012; 6 75-88 PMCID: PMC3620813

• 2012 -- Bailey Jr., D. E., Docherty, S. L., Adams, J. A., Carthron, D. L., Corazzini, K., Day, J. R., Neglia, E., Thygeson, M., Anderson, R. A.. Studying the clinical encounter with the Adaptive Leadership framework. Journal of Healthcare Leadership. August, 2012; 2012(4); 83-91

• 2012 -- Pubmed # 22744911 O'Neill, S. C., Lipkus, I. M., Sanderson, S. C., Shepperd, J., Docherty, S., McBride, C. M. Motivations for genetic testing for lung cancer risk among young smokers. Tob Control. June 2012, Epub ahead of print;

• 2012 -- Pubmed # 22658379 Hendricks-Ferguson, V. L., Cherven, B. O., Burns, D. S., Docherty, S. L., Phillips-Salimi, C. R., Roll, L., Stegenga, K. A., Donovan Stickler, M., Haase, J. E. Recruitment Strategies and Rates of a Multi-Site Behavioral Intervention for Adolescents and Young Adults With Cancer. J Pediatr Health Care. June, 2012; PMCID: PMC3448870

• 2012 -- Pubmed # 22512806 Tan, J. S., Docherty, S. L., Barfield, R., Brandon, D. H. Addressing parental bereavement support needs at the end of life for infants with complex chronic conditions. J Palliat Med. May, 2012; 15(5); 579-84

• 2011 -- Pubmed # 22012943 Robb, S. L., Burns, D. S., Docherty, S. L., Haase, J. E. Ensuring treatment fidelity in a multi-site behavioral intervention study: implementing NIH Behavior Change Consortium recommendations in the SMART trial. Psychooncology. November, 2011; 20(11); 1193-201

• 2011 -- Pubmed # 21994831 Adams, J. A., Bailey Jr, D. E., Anderson, R. A., Docherty, S. L. Nursing Roles and Strategies in End-of-Life Decision Making in Acute Care: A Systematic Review of the Literature. Nurs Res Pract. October, 2011; 2011 527834 PMCID: PMC3184494

• 2011 -- Pubmed # 21860660 Docherty, S. L., McBride, C. M., Sanderson, S. C., O'Neill, S. C., Shepperd, J. A., Lipkus, I. M. Young smokers' views of genetic susceptibility testing for lung cancer risk: minding unintended consequences. J Community Genet. September, 2011; 2(3); 165-172

• 2011 -- Docherty, S. L. Care of the medically fragile child. (Chapter 11). In Pediatric Acute Care: A Guide to Interprofessional Practice, edited by Reuter-Rice, K. & Bolick, B. July 25, 2011; Boston, MA: Jones & Bartlett Publishers.

• 2011 -- Pubmed # 21605319 Kelley, T. F., Brandon, D. H., Docherty, S. L. Electronic nursing documentation as a strategy to improve quality of patient care. J Nurs Scholarsh. June, 2011; 43(2); 154-62

• 2011 -- Pubmed # 21147402 Hawkins-Walsh, E., Berg, M., Docherty, S., Lindeke, L., Gaylord, N., Osborn, K. A national survey of the primary and acute care pediatric nurse practitioner educational preparation. J Pediatr Health Care. Jan-Feb, 2011; 25(1); 5-15

• 2011 -- Pubmed # 21147410 Berg, M., Hawkins-Walsh, E., Gaylord, N., Lindeke, L., Docherty, S. L. Emerging issues regarding pediatric nurse practitioner education in acute and primary care. J Pediatr Health Care. Jan-Feb, 2011; 25(1); 62-6

• 2010 -- Pubmed # 20379916 Barfield, R. C., Brandon, D., Thompson, J., Harris, N., Schmidt, M., Docherty, S. Mind the child: using interactive technology to improve child involvement in decision making about life-limiting illness. Am J Bioeth. April, 2010; 10(4); 28-30

• 2009 -- Pubmed # 19865004 Cox, C. E., Docherty, S. L., Brandon, D. H., Whaley, C., Attix, D. K., Clay, A. S., Dore, D. V., Hough, C. L., White, D. B., Tulsky, J. A. Surviving critical illness: acute respiratory distress syndrome as experienced by patients and their caregivers. Crit Care Med. October, 2009; 37(10); 2702-8 PMCID: PMC2771584

• 2007 -- Pubmed # 18069427 Docherty, S. L., Lowry, C., Miles, M. S. Poverty as context for the parenting experience of low-income Lumbee Indian mothers with a medically fragile infant. Neonatal Netw. November-December; 26(6); 361-9

• 2008 -- Brooks, J. L., Docherty, S. L. SMA notes from the field: Lumbee mothers and infant care. Anthropology News. November, 2008;

• 2007 -- Pubmed # 17907734 Docherty, S. L., Miles, M. S., Brandon, D. Searching for "the dying point:" providers' experiences with palliative care in pediatric acute care. Pediatr Nurs. November, 2007; 33(4); 335-41

• 2007 -- Docherty, S. L. Advanced practice nurses in pediatric hospital care. In Pediatric Hospital Medicine: Textbook of Inpatient Management (2nd Ed.), edited by Perkin, R. M., Swift, J .D., Newton, D. A., & Anas, N. September, 2007; pp. 14-18. Philadelphia: Lippincott Williams & Wilkins.

• 2007 -- Pubmed # 17803413 Brandon, D., Docherty, S. L., Thorpe, J. Infant and child deaths in acute care settings: implications for palliative care. J Palliat Med. August, 2007; 10(4); 910-8

• 2007 -- Docherty, S. L. Childhood cancer (Ch. 38) In Core Review for Primary Care Pediatric Nurse Practitioners, edited by Niederhauser, V. P. February, 2007; St. Louis: Elsevier Health Sciences.

• 2006 -- Docherty, S. L. Childhood cancer (Chapter 38) In Core Curriculum for Primary Care Pediatric Nurse Practitioners, edited by Ryan-Wenger, N. A. October, 2006; St. Louis: Mosby Elsevier.

• 2006 -- Pubmed # 16847909 Docherty, S. L., Sandelowski, M., Preisser, J. S. Three months in the symptom life of a teenage girl undergoing treatment for cancer. Res Nurs Health. August, 2006; 29(4); 294-310

• 2003 -- Pubmed # 12889547 Labyak, S. E., Bourguignon, C., Docherty, S. Sleep quality in children with juvenile rheumatoid arthritis. Holist Nurs Pract. August, 2003; 17(4); 193-200

• 2003 -- Pubmed # 12858695 Docherty, S. L. Symptom experiences of children and adolescents with cancer. Annu Rev Nurs Res. 2003; 21(2); 123-49

• 2002 -- Pubmed # 12881928 Docherty, S. L., Miles, M. S., Holditch-Davis, D. Worry about child health in mothers of hospitalized medically fragile infants. Adv Neonatal Care. April, 2002; 2(2); 84-92

• 2001 -- Pubmed # 11526617 Holditch-Davis, D., Docherty, S., Miles, M. S., Burchinal, M. Developmental outcomes of infants with bronchopulmonary dysplasia: comparison with other medically fragile infants. Res Nurs Health. June, 2001; 24(3); 181-93

• 2001 -- Docherty, S. L. Physical assessment of the preschool-aged child (instructional video package). 2001;

• 1999 -- Pubmed # 11885066 Miles, M. S., Wilson, S. M., Docherty, S. L. African American mothers' responses to hospitalization of an infant with serious health problems. Neonatal Netw. December, 1999; 18(8); 17-25

• 1999 -- Pubmed # 10094302 Docherty, S., Sandelowski, M. Interviewing children. Res Nurs Health. April, 1999; 22(2); 177-85

• 1997 -- Pubmed # 9256882 Sandelowski, M., Docherty, S., Emden, C. Focus on qualitative methods. Qualitative metasynthesis: issues and techniques. Res Nurs Health. August, 1997; 20(4); 365-71

• 1992 -- Pubmed # 1574213 Laschinger, H. K., Docherty, S., Dennis, C. Helping students use nursing models to guide research. Nurse Educ. June, 1992; 17(2); 36-8

Grant Funding (selected)

• Center for Adaptive Leadership in Cognitive/Affective Symptom Science  
  National Institutes of Health
  1P30-NR014139-01
  09/2012-06/2017
  The proposed Center of Excellence (P30), “Adaptive Leadership for Cognitive/Affective Symptom Science (ADAPT) at Duke University School of Nursing (DUSON), will promote biobehavioral research to advance symptom science using a new lens — the Adaptive Leadership (AL) framework — to conceptualize and study cognitive/affective symptoms, and/or intervene in ways that promote patients’ and their family caregivers’ adaptive abilities.

• Stigma Experiences, Affective Symptoms, and Engagement in Care among Women Aging with HIV  
  National Institutes of Health
  3P30-NR014139-04S1
  09/2012-06/2017
  Role: PI
  

• Phenotypic and Genotypic Associations with Symptom Clusters During Childhood Leukemia Treatment  
  NIH / National Cancer Institute
  1R01 NR010548 01A1
  09/2012-06/2017
  Role: Co-investigator
  Project Goal: To search for genetic variants associated with the oxidative stress and inflammatory pathways as well as explore CNS oxidative stress and cytokine biomarkers, and their relationships with symptom clusters. A repeated measures research design is used to evaluate the number and severity of treatment symptoms, including fatigue, sleep disturbance, pain, depression, nausea, physical activity changes, memory and cognition deficits, CSF oxidative stress and cytokine biomarkers, experienced by 400 children and adolescents, 3-18 years of age, with a diagnosis of leukemia during the most intense phase of treatment.

• Decision-Making for Infants with Complex Life-Threatening Conditions  
  National Institutes of Health/National Institute of Nursing Research
  1R01-NR010548-01A1
  09/2008-07/2013
  Role: PI
  Project Goals: This longitudinal multiple case study will examine the trajectory of decision-making for infants undergoing life-sustaining treatment for a complex life-threatening conditions and factors influencing parent’s decision-making.

• Decision-Making for Infants with Complex Life-Threatening Conditions  
  NIH-NINR
  1R01 NR010548-01A1
  10/2008-09/2013
  Project Goal: This longitudinal multiple case study will examine the trajectory of decision-making for infants undergoing life-sustaining treatments for complex life-threatening conditions and factors influencing parent’s decision-making.

• Decision tree modeling of return of whole genome sequencing results  
  Duke Institute for Genome Sciences and Policy (Collaborative & Interdisciplinary Grant )
  04/2012-03/2013
  Role: Co-Investigator
  Decisions regarding whether, when, how, and what kinds of results from whole genome sequencing (WGS) should be disclosed to patients and families are fraught, involving a range of technical, clinical, ethical, and regulatory considerations. In particular, performing WGS under a research protocol but for a clinical purpose (e.g., to assist in the diagnosis or management of a serious health condition for which traditional approaches have been exhausted), places the interpretation of results and the decision about their return at the interface between research and clinical care. This case study will explore the decision making trajectory for the disclosure of whole genome sequencing (WGS) results to families of pediatric patients.

• Decision-making for Infants with Complex Life-Threatening Conditions  
  National Institutes of Health
  3R01-NR010548-02S1
  02/2010-07/2011
  Project Goals: This administrative supplement is to develop a flexible data exploratory visualization software program that will allow for the graphic display of multiple layers and varying configurations of different levels of data from a currently funded R01 study.

• Administrative Supplement to Decision Making for Infants with Complex Life Threatening Conditions  
  National Institutes of Health/National Institute of Nursing Research
  3R01-NR010548-02S1
  09/2009-01/2011
  Role: PI
  This administrative supplement is to develop a flexible data exploratory visualization software program that will allow for the graphic display of multiple layers and varying configurations of different levels of data from a currently funded R01 study.

• Pediatric Acute/Chronic Care Nurse Practitioner Program  
  HRSA
  1D09-HP14984-01-00
  07/2009-06/2012
  Role: Faculty
  Project Goals: To expand enrollment and to further develop serious gaming as a QI, critical thinking enhancement skill.

• Mother Sibling Interactions  
  National Institutes of Health/National Institute of Nursing Research
  1R03NR011196-01A1
  09/2009-07/2011
  Role: Co-Investigator
  Project Goals: This longitudinal study explores the impact of a VLBW infant on mother-sibling interactions and sibling adjustment. A comparison group of fullterm infants will be used to determine which sibling adjustment problems are typical of having a new baby in the home and which are associated with the unique stress of having a VLBW infant.

• Young Smokers’ Reactions to Genetic Risk for Lung Cancer  
  National Institutes of Health - National Cancer Institute
  1R01-CA121922-01A2
  08/2007-06/2011
  Role: Co-Investigator
  Project Goals: This study examines whether providing genetic lung cancer susceptibility feedback to college smokers affect their perceptions of risk and worries and motivations to quit.

• Stories and Music for Adolescent/Young Adult Resilience During Transplant: The SMART Study  
  National Institute of Nursing Research Children’s Oncology Group
  1R01 NR008583-01A2: COG ANUR0631
  11/2007-04/2010
  Role: Site PI
  Project Goals: This study will test the efficacy of a therapeutic music video (TMV) intervention aimed at increasing resilience and quality of life of adolescents and young adults (AYA) undergoing bone marrow transplant.

• Maternal Adjustment to Caregiving for Premature Infants  
  National Institute of Nursing Research
  5R01NR008044-02 (Supplement)
  07/2007-06/2009
  Role: Co-Investigator
  Project Goals: The overall purpose of this study is to explore the effects of a preterm infant intervention currently under study (“Preterm Infants: Light Effects on Health and Development” (5R01NR008044-02) IRB # 4211-03-11R1) on maternal adjustment to the hospitalization and post discharge caregiving of a preterm infant.

• Mental Health Assessment for Pediatric Nurse Practitioners  
  Health Resources and Service Administration (HRSA)
  DO9-HP07988-01
  01/2007-12/2010
  Role: Faculty
  Project Goals: Three-year grant to educate nurses through innovative and strengthened curriculum at the Master’s level.

• Experiences, Functioning, and Well Being of Fathers of Children Undergoing Hematopoietic Stem Cell Transplant  
  NINR P20 - TRAC Pilot
  1P20NR07795-02
  01/2006-12/2008
  Role: PI
  Project Goals: This pilot study that will inform the design of a larger study addressing parental responses and adjustment patterns during a child’s HSCT and their relationship to the child’s symptom distress as well as health and development outcomes.

• The Compass Project: Bridging Medicine, Design, & Ethics to Enable Advance Care Planning & Meaningful Assent in Pediatric Phase I Trials  
  Duke Univ. School of Nursing Office of Research Affairs Small Grant Program
  01/2006-05/2011
  Role: PI
  Project Goals: This study will design and pilot test an instrument that can be used by children with life-threatening illnesses to express their ideas, goals, priorities, and desires, related to quality of life planning, in the context of Phase I trials.

• SMART - Theraputic Music Video  
  Indiana University
  10988
  11/2007-04/2008
  

• Maternal Caregiving of Children Post Stem Cell Transplant  
  National Institutes of Health
  1R15-NR009041-01
  08/2004-07/2008
  Role: PI
  Project Goals: A pilot study that will inform the design of a larger study addressing parental responses and adjustment patterns during a child’s HSCT and their relationship to the child’s symptom distress as well as health and development outcomes.

• Pediatric Health Care Provider Attitudes Regarding Palliative Care in the Acute Care Setting  
  Departmental
  01/2004-12/2005
  Role: PI
  Project goals: The purpose of this study is to describe the experiences of physicians, nurses, and social workers in providing palliative care to infants, children, and adolescents who have undergone intensive therapies for life threatening illnesses. The study will identify aids and barriers to the provision of palliative care in the pediatric acute care setting.

• Characteristics of Infants and Children Who Die in the Inpatient Settings  
  Departmental
  01/2004-12/2005
  Role: Co-Investigator
  Project goals: The purpose of this pilot study is to define the population of infants and children who die in acute care hospitals

• Sleep and Symptom Distress in Children with Juvenile Rheumatoid Arthritis  
  NIH Center for Research on Chronic Illness, UNC-Chapel Hill
  P30 NR03962
  01/2000-12/2002
  Role: Co-Investigator
  Project goals: The purpose of this cross-sectional study was to describe and compare sleep behavior, sleep quality and symptom experiences for one week in children with JRA and age and sex-matched healthy controls using self report and wrist actigraphy. At the conclusion, overnight sleep studies (polysomnography) were conducted to evaluate the depth and continuity of sleep in four children. These studies were conducted at the General Clinical Research Center at the University of North Carolina.

• Parental Role Attainment with Medically Fragile Infants  
  NIH/NINR
  R01 NR02868
  01/1994-12/1999
  Role: Research Assistant
  Project goals: The purpose of this longitudinal exploratory study was to explore the process of and factors associated with parental role attainment in parents of medically fragile infants.

• Patterns of Symptom Distress During the Initial Treatment Period in Three Children with Cancer  
  University of North Carolina-Chapel Hill
  01/1997-12/1999
  Role: PI
  Predoctoral Training Fellowship, Carolina Consortium on Human Development, University of North Carolina at Chapel Hill Small Grants Program Project goals: The purpose of this longitudinal multiple case study design was to explore patterns of symptom distress over the initial treatment period in children with cancer.

• Social Determinants of Health for African American HIV-infected Mothers  
  National Institutes of Health
  1F31-NR014628-01
  09/2013-08/2015
  Fellowship support for dissertation research of Courtney Caiola. This research study examines the lives of African-American HIV-infected mothers and their unique social location and the intersection of the social determinants of health. This work is an essential step in understanding and addressing the disparity in this population’s health outcomes.

• Adaptive Challenges for Adolescents with Sickle Cell Disease  
  American Nurses Foundation, Inc.
  09/2013-08/2014
  Support for dissertation research of Mariam Kayle. Project goal: Describe and explore the adaptive challenges and solutions of adolescents with sickle cell disease and their parents in self-managing their disease.

• Parent and Provider Decision-making for Infants with Hypoxic Ischemic Encephalopathy  
  American Nurses Foundation, Inc.
  09/2011-08/2012
  Support for dissertation research of Kimberly Allen.

• Decision-Making for Infants with Hypoxic Ischemic Encephalopathy  
  National Institutes of Health/ NINR
  1F31-NR012083-01
  06/2010-05/2013
  Role: Sponsor and co-PI
  Fellowship supporting research of Dr. Docherty's PhD student Kimberly A. Allen on hypoxic ischemic encephalopathy (HIE). Project goals: Prospective, longitudinal, multiple case study will examine how decision-making trajectories of parents and providers caring for infants with HIE from birth to 6 months of age. To further illuminate how decision-making for infants with HIE develops, the decision-making trajectories for infants with HIE will be compared to those with infants with other complex life-threatening conditions: extremely premature infants (<26 weeks gestational age) and infants with complex cardiac defects (e.g., single ventricle) from an ongoing study. The comparison groups will be used to search for influences that optimize decision-making. The proposed study will provide information to develop interventions to aid parents and providers in decision-making for infants with HIE.