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Puffer, ES; Pian, J; Sikkema, KJ; Ogwang-Odhiambo, RA; Broverman, SA, Developing a family-based HIV prevention intervention in rural Kenya: challenges in conducting community-based participatory research., edited by Joan E. Sieber, Journal of empirical research on human research ethics : JERHRE, vol. 8 no. 2 (April, 2013), pp. 119-128, University of California Press [23651936], [doi] .
(last updated on 2024/04/18)
Abstract:
Community-Based Participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating power imbalances between APs and the CAC; CAC members' shifting roles as part of the CAC and wider community; and anticipated challenges in decision making about sustainability. Factors contributing to ethical dilemmas included low access to education, scarcity of financial resources, and the shortage of HIV-related services despite high prevalence.

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			Papers Published Puffer, ES; Pian, J; Sikkema, KJ; Ogwang-Odhiambo, RA; Broverman, SA, Developing a family-based HIV prevention intervention in rural Kenya: challenges in conducting community-based participatory research., edited by Joan E. Sieber, Journal of empirical research on human research ethics : JERHRE, vol. 8 no. 2 (April, 2013), pp. 119-128, University of California Press [23651936], [doi] . (last updated on 2024/04/18) Abstract: Community-Based Participatory research (CBPR) introduces new ethical challenges for HIV prevention studies in low-resource international settings. We describe a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. Academic partners (APs) worked with a community advisory committee (CAC) during formative research, intervention development, and a pilot trial. Ethical challenges emerged related to: negotiating power imbalances between APs and the CAC; CAC members' shifting roles as part of the CAC and wider community; and anticipated challenges in decision making about sustainability. Factors contributing to ethical dilemmas included low access to education, scarcity of financial resources, and the shortage of HIV-related services despite high prevalence.