Research Interests for Charmaine D. Royal

My research, scholarship, and teaching focus on ethical, psychosocial, and societal issues in genetics and genomics, particularly intersections with constructs of race, ethnicity, and ancestry. Through my work I seek to: 1) foster ethical conduct in science, medicine, and society with regard to the use of these constructs and the application of genetic and genomic technologies that infer them; 2) advance holistic approaches to understanding disease and promoting optimal health and overall well-being for individuals and populations; and 3) develop a model of interdisciplinary work that can serve as a template or example for others who wish to do similar work. My current empirical research includes studies on: race, genetics, and genetic ancestry testing in the US; the National Collegiate Athletic Association (NCAA) sickle cell trait testing; sickle cell disease in the US, Cameroon, South Africa, and Jamaica; and BiDil - the first and only drug approved by the FDA to treat a specific 'racial' group.

Keywords:

Adaptation, Physiological, Adaptation, Psychological, Adolescent, Adolescent Psychology, Adult, African Americans, Aged, Aged, 80 and over, Alleles, Alzheimer's disease, Analysis of Variance, Anemia, Sickle Cell, Attitude to Health, Awareness, Child, Cultural Characteristics, Data Collection, DNA, Educational Status, Ethnic Groups, European Continental Ancestry Group, Faculty, Female, Gene-Environment Interaction, Genes, Genetic Predisposition to Disease, Genetic Research, Genetic Testing, Genome, Genotype, Health, Health Knowledge, Attitudes, Practice, Health Literacy, Hispanic Americans, Human Genome Project, Humans, Information Services, Longitudinal Studies, Male, Middle Aged, Patients, Polymorphism, Genetic, Population Groups, Prejudice, Questionnaires, Regression Analysis, Risk Assessment, Risk Factors, Science, Self Concept, Serotonin Plasma Membrane Transport Proteins, Sex Factors, Social Environment, Social Networking, Social Support, Socioeconomic Factors, Students, United States, Universities, Young Adult

Recent Publications

1. Munung, NS; Royal, CD; de Kock, C; Awandare, G; Nembaware, V; Nguefack, S; Treadwell, M; Wonkam, A, Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement., The Hastings Center report, vol. 54 Suppl 2 (December, 2024), pp. S84-S92 [doi] [abs]
2. Garrett-Peters, P; Ifekwunigwe, J; Schmid, L; Royal, C, A CAMPUS NARRATIVE OF A RESEARCH-INFORMED VISIONING PROCESS, in Strengthening Campus Communities Through the Truth, Racial Healing, and Transformation™ Framework (January, 2024), pp. 21-28 [doi] [abs]
3. Bulgin, D; Asnani, M; Vorderstrasse, A; Royal, C; Pan, W; Tanabe, P, Stigma and quality of life in adults with sickle cell disease in Jamaica and the United States., Psychology, health & medicine, vol. 28 no. 5 (June, 2023), pp. 1133-1147 [doi] [abs]
4. Wagner, JK; Yu, J-H; Fullwiley, D; Moore, C; Wilson, JF; Bamshad, MJ; Royal, CD; Genetic Ancestry Inference Roundtable Participants, Guidelines for genetic ancestry inference created through roundtable discussions., HGG advances, vol. 4 no. 2 (April, 2023), pp. 100178 [doi] [abs]
5. Christopher, GC; Austin, A; Fullilove, MT; Jenkins, A; Royal, CDM; Sockabasin, L, Addressing Racism and Its Deeply Entrenched Dynamics: A 21st Century Imperative., Health equity, vol. 7 no. 1 (January, 2023), pp. 24-37 [doi]