Publications [#317936] of Charmaine D. Royal
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- Royal, CD; Headings, VE; Molnar, ET; Ampy, FR, Resilience in siblings of children with sickle cell disease.,
Journal of genetic counseling, vol. 4 no. 3
(September, 1995),
pp. 199-217 [doi] .
(last updated on 2024/11/03)Abstract:
This pilot study was conducted to identify factors responsible for promoting resilience in siblings of children with sickle cell disease. Twenty siblings (10-17 years of age) of children (5-13 years) with sickle cell disease were selected from the Pediatric Clinic of Howard University Center for Sickle Cell Disease. The siblings responded to questionnaires, and the data obtained was analyzed by chi-square for association. The results indicated that age, birth order, and gender had no effect on resilience in the siblings. However, family size, number of parents in the home, sibling's knowledge of the illness, degree of morbidity of the illness, socioeconomic status of the family, and parents' attitudes and childrearing practices were all found to affect resilience. These findings provide additional insight into the psychosocial aspects of, and genetic counseling for sickle cell disease, as well as for other chronic genetic disorders.